Woman to Woman Partnership with Ovarian Cycle
Last year Woman to Woman started a partnership with Ovarian Cycle, OCRFA’s indoor cycling event dedicated to raising funds, and spreading awareness, for ovarian cancer. With rides in 20 cities around the country in 2017, Ovarian Cycle and Woman to Woman are in many of the same cities! Earlier this year, on the weekend of April 22nd, Ovarian Cycle teamed up with Northside Hospital to work together and create new teams. Northside Hospital received the Woman to Woman grant in 2015 and has been spearheaded by their program coordinator, Kymberly Duncan. Kymberly was generous enough to dedicate her time to the ride by putting together a Northside team and attending the ride in person so we asked her a few questions about her experience:
OCRFA: What made you want to work with Woman to Woman?
Kymberly Duncan: I currently manage a mentoring program called Network of Hope for Northside Hospital Cancer Institute. The Woman To Woman program was a natural fit for expansion and works under the umbrella of Network of Hope. I believe that this program is very valuable and has been beneficial for many women.
OCRFA: What is the most rewarding part of working with a patient support program?
KD: Many survivors say that they would like to give back and help others. I think this program has been a perfect way for survivors to help those who have been recently diagnosed. I also love that this program provides hope.
OCRFA: How did you participate in Ovarian Cycle?
KD: Unfortunately, since I am 9 months pregnant, I was unable to ride this year! However, I was the team captain, helped promote the event in practices, recruited staff and survivors to ride and helped connect physicians and survivors for media plugs. We had 4 riders (including myself last year) and 19 this year—an amazing turnout! We also sponsored the event.
OCRFA: What would you say to people interested in participating in Ovarian Cycle events?
KD: Go for it! I like that Ovarian Cycle is different from other types of fundraisers. It brings awareness and while it gives the rider a great workout, it is accessible to people with all levels of fitness and experience. It’s a great way to bring our survivor community together for a great cause!
If you are interested in participating in, or supporting, an Ovarian Cycle ride, you can visit our website to find upcoming events near you.
On Capitol Hill with Chad Ramsey
Despite a flurry of activity in the U.S. House and Senate in the first half of 2017, little progress has been made on any legislative fronts that impact the ovarian cancer community. In a dramatic late-night vote the Senate narrowly defeated a pared-down effort to repeal the Affordable Care Act. Both the Senate and House have now left town for the August recess. Upon their return, we expect the Senate to take up the FY2018 National Defense Authorization Act (NDAA) which, in its current form threatens to defund the Ovarian Cancer Research Program (OCRP) and other research centers within the Congressionally Directed Medical Research Programs (CDMRP). Senators Dick Durbin (D-IL) and Roy Blunt (R-MO) are offering an amendment to the NDAA that would protect these research programs. Stay tuned for alerts when Congress reconvenes in early September.
Congress will also be considering appropriations bills that determine 2018 funding for vital programs within the National Institutes of Health (NIH) and Centers for Disease Control (CDC). Currently the legislation contains a small increase in funding for NIH, which OCRFA heartily support. We will keep you aware of any progress or roadblocks as the process continues.
Finally, progress continues on H.R. 1409, the Cancer Drug Parity Act of 2017. This bipartisan bill seeks to bring out-of-pocket patient costs for oral cancer drugs in line with IV administered drugs. The bill now has 80 cosponsors equally divided among Republicans and Democrats. See whether your Member of Congress has joined as a cosponsor.
Woman to Woman Shout Outs!
Mount Sinai Hospital (NY) recently had a fundraiser for its Woman to Woman program. The event was well attended and was a great success!
University of Alabama at Birmingham has launched their Woman to Woman website. It looks great!
University of Chicago has been working to expand Woman to Woman to a community site, Silver Cross Hospital. Expanding the program will bring Woman to Woman closer to more women who need it. Congratulations to the U. Chicago Woman to Woman team!
New Woman to Woman sites: OCRFA received applications for new Woman to Woman Program sites this past Spring. After all applications were reviewed, we are excited to say that we’ve selected seven new sites! Stay tuned for OCRFA’s announcement of the new sites in early Fall. If someone you know is interested in applying for a hospital or community based Woman to Woman grant in the future, please email Emily at firstname.lastname@example.org to be added to the mailing list.
Ovarian Cancer National Conference: Every year, OCRFA brings together ovarian cancer patients, survivors and caregivers at the Ovarian Cancer National Conference, a three day event filled with information sessions, speakers, fun and community. This year the Conference took place in Chicago, IL from Friday, July 7th to Sunday, July 9th. This video captures the spirit of the weekend, which left everyone energized and inspired. Save the date for next year’s conference, scheduled for July 13-15, 2018, in Washington DC. A very special thank you to the University of Chicago Woman to Woman program leaders Dr. Nita Lee and Dr. Fay Hlubocky, both of whom presented at the conference!
Woman to Woman at American Society of Clinical Oncology: OCRFA was very productive at ASCO this June! OCRFA exhibited in the exhibit hall, and hosted a breakfast promoting the Woman to Woman program to potential funders. The program, which featured program participants in the Chicago area, was very well received. Another thank you to Dr. Lee and Dr. Hlubocky for helping us put the breakfast together.